Journey of Hope

The Journey of Hope has a mission to bring to the forefront the abilities of people with disabilities. Their north route takes the Push America team through Utah in mid-June. We’re planning to meet them for their ride into Payson, Utah. The map below has the course outline for June 21. Push America has a team of 26 cyclists and 10 crew that we will join.

Route map:  http://ridewithgps.com/routes/2269770

Amy Purdy Can Move Borders

Here’s a little bit of inspiration, passed on through Amy Purdy.  Take a moment to think about her question, then decide when you begin to write your own story.

You can find out more about Amy Purdy at her website.  Amy started Adaptive Action Sports, a non-profit whose goal is to build independence and confidence by creating skateboard, snowboard, wakeboard, motocross camps and other activities for enthusiasts with permanent physical disabilities.

March 2014 Update: Amy is competing in Snowboarding at the Sochi Winter Olympics!

Adaptive Musical Intruments

Thanks to contributors of the HemiKids mail list for this great list of resources on playing musical instruments!

One Handed Woodwinds Program

http://onehandwinds.unk.edu/index.html
The founder, David Nabb is Professor of Music at the University of Nebraska at Kearney. He had a stroke himself and has become very interested in the development of one handed instruments … not only for himself, but also to help others. There is a section where you can apply get an instrument. I love people like this!!!

AMEND Music Center
http://www.amendmusiccenter.com/PublicationSoundOfHope.aspx
Developed a very cool devise that allows a one handed person to play saxophones and baritones (they are hoping in the future to develop a devise for more instruments).

ADAPTIVE

A Day’s Work
http://www.adaysworkmusiceducation.com/

Adaptive Gear, Coalition for disabled musician
http://www.disabled-musicians.org/equip.html

BOOKS

Clinically Adapted Instruments for the Multiply Handicapped
Compiled by Donna Chadwick & Cynthia Clark
ISBN 978-0918812131
A unique book containing 100 adapted and original instrument designs, descriptions, and results of extensive practical applications. Includes drawings or photos, and information on how each adapted instrument was made. 192 pages.

Musicophilia
By Oliver Sacks
Neurologist Oliver Sacks explores the place music occupies in the brain and how it affects the human condition.

INSTRUMENTS AND ADAPTATIONS

 

The Salt Lake County Parks & Rec “Plus One” Pass

If you live in Salt Lake County and have a permanent disability, you really need to check out the county’s “Plus One” pass.  This program offers two great incentives:  A  discounted annual pass for the primary member and their family to any of the Salt Lake County Parks & Recreation facilities, and a special allowance of free entrance for an assistant for the pass holder – that’s the “plus one” of the membership.  The person with a disability qualifies as the first person on a family pass, and is identified by a “+1″ after their name, for example (John Doe +1).

The assistant can participate in all activities that the owner of the plus one pass is
doing, and must stay within a reasonable proximity to provide assistance required to the owner of the plus one pass.

Any Salt Lake County resident (youth or adult) who is permanently disabled and who can provide one of the following pieces of documentation to receive a facility pass that permits the holder an assistant entrance fee at no cost:

  1. A statement signed by a licensed physician attesting that the applicant has a permanent physical, mental, or sensory impairment that severely limits one or more major life activity, and stating the nature of the impairment
  2. A document issued by a federal agency, such as the Veteran’s Administration, which attests that the applicant has been medically determined to be eligible to receive federal benefits as a result of disability. Other acceptable federal agency documents include proof of receipt of Social Security Disability Income (SSDI) or Supplemental Security Income (SSI) due to disability
  3. A document issued by a state agency, such as the vocational rehabilitation agency, which attests that the applicant has been medically determined to be eligible to receive that agencies benefits or services as a result of medically determined permanent disability

The Pass is good for one year from the date of purchase. To learn more, go to the Salt Lake County Adaptive Recreation program page, or stop by any Salt Lake County Recreation Centers to sign up (list of centers).

National Parks Free Access Pass

The National Park Service offers a FREE “America the Beautiful” access pass to any U.S. citizen or permanent resident with a permanent disability.  The pass can be obtained in person at a federal recreation site or through the mail using this application form (if you mail the application a $10 process fee will apply).  Applicants must provide documentation of permanent disability and residency or citizenship.

The pass grants access to all National Parks and Federal Recreational Lands Pass, including 17 National Parks, Historic Sites and Trails, Monuments and Recreation Areas within Utah.  Arches National Park in Moab, Utah is one of the best sites to explore, and offers incredible experiences that are insightful and inspiring.

A family visit to Arches National Park in March 2010References:
National Parks – Accessible to Anyone
America the Beautiful – Access Pass Info
National Parks in Utah